Trisomy 18 Foundation

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Meet our Board of Directors

The current Board of Directors consists of parents who were themselves affected by a child with Trisomy 18 and who want to make the future better for other families dealing with Trisomy 18. In their role as Board Members, they provide direction and strategic planning for the Foundation. They use input from the subject experts on the advisory councils and feedback from staff who operate the organization.

Victoria Miller, President Susan Donohoe
Don Miller Sean Brown, VP-Development

 

Victoria MillerVictoria Miller, President

Victoria has over 25 years of experience in public advocacy work and leadership positions in various private and public-sector ventures. Prior to beginning the Trisomy 18 Foundation, Victoria served as an ombudsman leader for US Navy families, setting up prenatal support services for military families in a remote base in the Middle East. She has extensive experience in planning, marketing and communications, and business start-ups in the electric utility industry and wholesale gift industry.

Victoria has also taught extensively at the college level in American history, business writing, and science topics. She is a Phi Beta Kappa graduate from the University of Texas at Austin, where she graduated with a BA degree with Highest Honors. She also had a Master's degree from the University of Michigan and has completed her coursework for a PhD degree at UT Austin.

Victoria is married to Don Miller and they live in Northern Virginia with their three unruly feline children, Ben, Claire and Louie. Victoria began leadership of what has become the Trisomy 18 Foundation in early 2002, one year after the loss of her infant son, Isaac, at 11 days old due to complications associated with Trisomy 18. She and her husband are planning to adopt in the near future to expand their family, choosing not to try to have more children after their loss of Isaac.

 

Don MillerDon Miller

Don has over 25 years of experience in the military and defense industry, specializing in naval engineering and human resource planning.  He is currently serving as Senior Manager at Computer Sciences Corporation in Washington, D.C. where he has been instrumental in revamping the Manpower and Training Department as part of the Logistics and Acquisition Team for the Amphibious Warfare Ship Acquisition Program.  

Before joining CSC, Don served in the US Navy in Surface Warfare, ending his military career as a Master Chief, earning 3 Navy Commendation Medals and many other distinctions. While on active duty, he also earned a Bachelor of Science degree with High Honors in Workforce Education from Southern Illinois University.  He also has a Masters of Science in Management from Troy State University.  He and his wife, Victoria, founded the Trisomy 18 Foundation after the loss of their baby son, Isaac.  They currently live in Northern Virginia. 


 

Susan DonohoeSusan Donohoe

Susan has spent over 15 years working in the non profit community. Highlights of her career include developing and staffing the international programs for the 40,000 member organization, the American Society for Microbiology, project managing a 7 million education outreach program designed to excite the students and the general public about the wonders of the microbial world, serving as the Director for a non profit foundation dedicated to educating students about the importance of pursuing careers in IT, and recently successfully lobbying on Capital Hill on labor and immigration issues that impact US IT workers.

Currently, Susan is a Director of Programs for the National Association of Computer Consultant Businesses. Areas that fall under her direction include public policy and meetings and conferences. Susan has a BA in Political Science from Siena College in Albany, New York and a Masters in International Commerce from George Mason University School of Public Policy, Fairfax, VA. Susan’s extensive experience in non profit management, public communication, and legislative affairs will assist the Trisomy 18 Foundation as it develops new programs and begins its advocacy efforts.

Susan is married to Christopher Donohoe and has two beautiful girls, Madelyn and Brigid. She became involved in the Trisomy 18 Foundation after the loss of their son, Thomas John in December 2003. The invaluable support that Susan has received throughout her Trisomy 18 journey compelled her to do something more so that no family would ever have to experience Trisomy 18 alone and uninformed.  

 

Sean Brown, Vice-President of DevelopmentSean (little)

With a background in Marketing and Development in the education field, Sean Brown of New Jersey brings his talents and skills to the Foundation to help guide national-scaled campaigns that will grow the base of resources needed for the rapidly expanding research, advocacy and patient education programs of the Foundation.

Sean is husband to Erin and father to Gavin (3) and Molly, who passed away on March 13, 2008.  When asked why he would take on this position at the Foundation, Sean said, "If Erin had not come home and found the Trisomy 18 Foundation on the web, things would have been very different with the pregnancy, delivery, and how we've cared for Molly."

In his new role as Vice-President for Development, Sean hit the ground running - after swimming and biking - by launching the grassroots fundraising program Triathletes for Trisomy 18 at the NJ State Triathlon on July 22, 2007 at Mercer County Park, NJ. For more information, you can visit his Legacy Page.

 

Positions on the Board of Directors are volunteer positions. The Board is required to hold one board meeting annually in person; the remaining meetings may be by teleconference. They are expected to volunteer time in researching and advising on strategic direction. In addition, Board Members are to be public ambassadors for the Trisomy 18 Foundation, spreading awareness and raising money to support the efforts of the Foundation.

Interested in joining our Board of Directors?

Please fill out this brief survey to apply: Board of Directors Application

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