Self-Advocacy

Advocacy Home Awareness Programs Federal Research Funding Self-Advocacy Legislation & Regulatory Initiatives

What is Self-Advocacy? It is speaking up for yourself and your child in regard to handling your Trisomy 18 pregnancy. It is having control over your child's care.

It is having the information and resources available to make the best decisions for your child, and then communicating them to your child's doctor, therapist, or other caregiver.

We hope to help you obtain the information and resources that you need to adequately advocate for your child. As you learn and uncover important information, we invite you to share it with other parents in the Trisomy 18 community so that others may benefit as well.

The primary ways we can assist your self-advocacy efforts are by:

• Sharing articles and resources that other parents have found to be helpful. Submit an article or resource.
• Providing a community of parents with whom to discuss these issues. Participate in our Online Support Community.

Articles and Resources

Know of a resource we should add? Share it here.

Recent Developments Related to NCLB Legislation
Parents caring for a disabled child related to a Trisomy 18 will want to be aware of how No Child Left Behind (NCLB) legislation greatly impact public educational resources available to your child.
 
Emergency Care Plans for Children with Special Health Care Needs
The Emergency Medical Services for Children (EMSC) Program encourages parents (or guardians) and caregivers of children with special health care needs to develop a written emergency care plan and have it in plain sight, ready to go