Subsequent Pregnancy After T18
After having a Trisomy 18 pregnancy, subsequent pregnancies can be very challenging.
Subsequent pregnancies after having a child with Trisomy 18 are usually a lot different from standard pregnancies. Not that they are necessarily different medically, but emotionally. The innocent joy associated with pregnancy is gone, replaced by an awareness of the many things that can go wrong.
Sometimes conceiving again is a challenge; other times conception occurs so quickly that the parents have hardly begun to grieve their previous child. Sometimes the next pregnancy results in a miscarriage, adding more grief to what the parents are already feeling. Parents have widely differing views on what prenatal testing to have with their next child, but most agree that regardless of test results, the pregnancy is very stressful until they are holding a healthy baby in their arms.
Many parents find it helpful to have their OB's consider their next pregnancy "high-risk" because of the additional ultrasounds and care that they receive during the pregnancy. And many are surprised by the reawakening of grief that they sometimes feel as their new baby is born and grows up.
One of the most beneficial things in this journey for many parents has been connecting with others who are sharing the same concerns and issues with their subsequent pregnancies. We have an online community where you can interact with other families and ask them questions directly about their experiences. See the Online Support Community home page for more information about this community and how you can join it. Of particular interest will be the Subsequent Pregnancy after T18 board.
It may also help you to reacquaint yourself with the options for prenatal testing, so you can determine what testing will be best for your subsequent pregnancy.
Best wishes as you welcome your new addition to your family!
Here is some additional reading that may be helpful:
Introducing "Our Child's Legacy" Program
The Trisomy 18 Foundation is excited to announce a new program for supporting parents of children with Trisomy 18. Called "Our Child's Legacy", this program provides parents with an easy way to create a website for their child, including a photo album, guestbook, and friendly URL to share with friends and family.
NIH FASTER Study Concludes First Trimester Screening Is Better Than Second Trimester Down Syndrome Screening
First trimester Nuchal Translucency/freeBeta/PAPP-A prenatal screening for chromosomal disorders (Downs, T18/T13) has been confirmed by the NIH FASTER Study to be more effective than second trimester screening methods.
Environmental Causes of Human Congenital Malformations
Environmental Causes of Human Congenital Malformations: The Pediatrician's Role in Dealing With These Complex Clinical Problems Caused by a Multiplicity of Environmental and Genetic Factors
Information regarding Chromosomal Abnormalities in Multiples
To have one baby with trisomy 18 is hard enough. To find out that you have twins or triplets and that one is affected by trisomy 18 makes decisions and treatment options all the more challenging. Here are 2 articles to help you.
NYTimes on study about risks of subsequent pregnancy too soon
VITAL SIGNS At Risk: Putting Time Between Newborns By ERIC NAGOURNEY New York Times August 19, 2003
Study Links Chromosomal Errors to Common Ingredient in Plastics
Our Stolen Future: BPA Linked to Chromosome Error that Causes Birth Defects
What to expect from Genetic Evaluation and Counseling
This is a link to an article on what you can expect when referred to a Genetic Counselor within the limits outlined in the following disclaimer from the article.