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Defying the odds for 25 years Tiffany Lauren Williams


Tiffany

Tiffany

Total Number of Gifts: 5
Total Value of Gifts: $350.00

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adrienne campbell

Ricki Lewis

Edward Wiest

Marvin & Jackie Kelly

Don and Victoria Miller

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August 24, 1988 - October 3, 2013

On October 3, 2013 Tiffany passed away surrounded by the love of her family. She survived and thrived for 25 years with Trisomy 18 when she wasn't expected to live to see her first birthday. Tiffany would want us all to remember her by the love she gave and the joy she brought to those around her. RJ Lewis met and photographed Tiffany less than 3 months before her death. Here are his words...

***Story and Photos by RJ Lewis***

We all love the story of the underdog… Watching someone defying the odds and doing something after being told that they would never be able to. That underdog is Tiffany Williams.

On July 26th, 2013 at 8:45am, I walked up the steps of the home of Maria and Craig Williams. I was there to finally meet Tiffany Williams. Tiffany was born on 8/24/1988. Two weeks later she was finally diagnosed with Trisomy 18. If you think that we do not know as much as we should about Trisomy 18 now, back in the 80s you were lucky they knew how to spell it.

What set alarms off for doctors were her low set ears and rockabottom feet, so genetic testing began and finally two weeks later doctors made the diagnosis. Along with Full Trisomy 18 diagnosis the dreadful words were said, “You have no more then a year with her. Take her home and love her.” So that is what they did

God is the center of this entire family. As Maria said, “I put my faith in God and he is the reason she is here.” I asked Maria what was her favorite moment of her day was and she said when she wakes up and walks into Tiffany's room and she rolls over and gives her that amazing smile. That has not changed 24 years later. That is right… You did not read that wrong… The baby that was told she would not live past a year old is 24 years old.

So when I walked into their house there she was. This beautiful girl lying there on the couch watching her favorite cartoons and when I said hi she gave me that amazing smile and I fell in love with her. I had this huge smile on my face. It was clear to me that Tiffany new exactly what was going on and new exactly how to push the right buttons. She may not have the capabilities to walk, talk, or feed herself… But trust me she knows exactly what she is doing. Clear example… She knows that her mom hates when taking photos she makes this scrunchy face and what did she do… First the smile and then the face and we all laughed… Maria is like ” Tiffy stop making that silly face!” And huge smile from Tiffany as if she was saying… “Yep I did it HaHaHa!”

Here is another story Maria told me about Tiffany…

When she was 5 years old she wanted to put her in the Department of Education because she wanted her to get an education, so she needed a Psych Evaluation. The man read her profile and when they walked in the room the man said “Hi Tiffany! Can you draw me a picture?” She turned to her mom and it was as if she was saying, “What is wrong with this idiot? Does he not know I am disabled?” Maria told the doctor, ” She cannot do that.” He then responds… “Tiffany can you draw me a picture?” The rest of the interview she would not look at him and when he asked why she was ignoring him… Maria told him because you insulted her intelligence. That story cracked us both up.


During my morning with Tiffany, I got to talk to her Dad, Craig Williams. Every time he is around her, this big guy becomes this soft teddy bear. We sat down and the one thing he kept telling me was that when he heard the news when Tiffany that she had Trisomy 18, he was devastated. Not because of the Trisomy 18 diagnosis, but because doctors and social workers had nothing but negative words and reactions. “She is not going to live much longer. Go love her while you can.” That is what they told him. Not one of them gave him any sort of positive news. So he did exactly what his wife Maria did… Took her home and loved her. He tuned out all the negative thoughts and words and but it in God’s hands. Because of all this and so much more, Craig started to produce a documentary about Tiffany and all children with Trisomy 18 and continues to work on it today. Like me, he wants to help raise awareness to the world, but also let people know that this is not a death sentence.

We all hear and see that Father/Daughter bond and when you see Craig and Tiffany together it is clear, so clear. When Tiffany looks at him her eyes light up and a smile shines on her face as if she is saying, ” Yep that is my Daddy!” I asked Craig what is that moment of his day when it is just him and her. That moment where everything is good and no one else exists. He said when he gets home from work, sees her lying on the couch, smiles at him, picks her up and the two watch TV together. Tiffany sitting on her Daddy’s lap with her thumb in his mouth. Watching this not only made me realize why I am doing this project, but also made me really excited of the thought of one day becoming a dad

As the shoot went on and Tiffany was playing her jokes with her parents while taking photos, it was time for her younger sister Symone to take some photos with her. When I tell you Tiffany completely changed and you could see and even feel the bond these two have. Tiffany just lit up. It was as if Tiffany was saying, “Ok now that the parents are gone it is sister time!” There was something just unspeakable between the two and so beautiful to see.

Maria told me a story about these two. The first was when she brought Symone home from the hospital. She laid her right next to Tiffany and said that this was her new baby sister. Tiffany then smacks Symone in the head. It was as if she was initiating her into her world…a world and a bond there forever will share.

I honestly can say it was a true honor to be around this amazing family. I truly felt when I left there that I was part of the family. I even had my little moment with Tiffany when we took a picture together on my iPhone and she held my hand and gave me this amazing smile.

Tiffany is not just God’s Miracle sent to Maria and Craig, but a Miracle sent to the world. She defies the odds everyday and have been doing it for 24 years. She is so full of love and inspiration. I am truly honored and blessed to know Tiffany and I cannot wait to see what mile stone she breaks next… Or how she annoys her sister… :)

http://themiracle18blog.tumblr.com/



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Records 1 - 25 of 29

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Colleen Harmon Foster-Bey
Thu, Oct 10, 2013
Craig and family: My sincerest condolences are extended to you at the loss of your daughter. May God comfort you at this time of sorrow and bless you through the days to come.

Symone Williams
Mon, Oct 07, 2013
Rest in Peace to beautiful older sister Tiffany. I will always cherish your presence while you were on this earth.I will miss your smile, and you laughing at me when I do something silly, and most of all you beating me up and getting away with it.

Amanda Freeman
Mon, Oct 07, 2013
Prayers for your family! Your family an daughter are a true inspiration to families of kids with T18!! Sorry for you lose an praying for peace for these hard times!!!

Nancy Wasilowski
Sat, Oct 05, 2013
I'm so sorry to hear that Tiffany's journey here is done. I will truely miss seeing her amazing smile. She has proven to be a warrior in the fight against ignorance on the joys of raising kids with trisomy. Sending prayers for peace and comforting memories as you face the days ahead.

Rita arismendiz
Sat, Oct 05, 2013
I'm so sorry for ur loss...ur daughter is a beautiful young lady....sending prayers for strength and comfort....R.I.P. Sweet angel

Sidney Jackson-Gomez
Sat, Oct 05, 2013
Maria and Craig, I just heard of our loss and though I know we are celebrating her life...I am heartbroken for you.
She impacted us all, it's been years, but I can still remember getting "the eye" from that sweet spirited, strong willed angel when I said something she didn't agree with...and felt promptly put in my place..something that doesn't often happen to me. Please know that I mourn with you and for you.
Sidney

Lisa Clements
Sat, Oct 05, 2013
As the grandmother of a t-18 angel baby (she live 4 days), I would like to extend my condolences for your loss. I am so happy that you had so much time with her, and that you so focused on celebrating her life instead of focusing on the loss. Much love and light to you and your family!

Judy Hammett
Sat, Oct 05, 2013
Tiffany. Thank you for being in this old world as a light for all of us. You have given strength and faith to those who might otherwise have had none.
Your beauty, joy, smile and love of life has taught each of us so much.
We know you are flying and singing with the Angels now. You are not just walking but running and laughing and playing. And at night you sit on the knee of God and He tells you the stories from His Bible.
One day we will meet you in Heaven. Until then, fly little one fly.
With love.

Heidi Hulspas
Sat, Oct 05, 2013
You are such an inspiration Tiffany. And that will live on in all the C18 families. Xxx

christina Edwardson
Sat, Oct 05, 2013
Rest In Peace..beautiful child. And you my Young Lady..you have the inspirarion...and the very Will to go on..and now that God has a Mission still to tell and inspired. .today. Your an Angel..God's child...JESUS loved one...and no more pain or suffer...but strength. .. Know we love you ...and we express the Families the Love of God..
We feel for all.

Tanya Schmitt
Sat, Oct 05, 2013
My deepest sympathy to your family. I have seen your prayer requests on Guideposts Our Prayer before and I found out that you were praying for your beautiful daughter with T18. As it turns out, a family member of mine has Chromosome 18 deletion so I am familar with these blessed children. I was very touched by your prayers and know that God is good and Tiffany is healthy and happy in heaven. I pray for your family for God to comfort you.

Tess and Camie Maloy
Sat, Oct 05, 2013
What a blessing to have a such a wonderful love in your life. You both were such wonderful parents and I am truly amazed at your strength. MY Tess is 23Yrs old and my heart is filled with such pain for your loss.

Olivia Perez
Sat, Oct 05, 2013
I loved reading her story it brought tears to my eyes, Tiffany was born 2 months after my baby sister Laura and I would have loved to have had my sister for 25yrs. I would have loved to have met this beautiful angel, my love and prayers go the family. Look out the window mamma Williams she is smiling down at you and when it rains remember each raindrop on your window is her saying I LOVE YOU!

Lisa Wosztal
Sat, Oct 05, 2013
I'm so sad to hear about little Tiffany's passing.
I lost my son Samuel to T18 a year and a half ago when I was 6 months pregnant. Tiffany is an inspiration.
Her story warms my heart and brought tears to my eyes this morning. What a lucky family to be blessed with such a little firecracker who defied the odds for so many years. Absolutely amazing. The world is a better place because Tiffany was in it.
Sending love and hugs from Vancouver, Canada. She will truly be in my heart forever.

Amanda Adams
Sat, Oct 05, 2013
I love reading about your daughter Tiffany and how strong your families faith in God is..my heart hurts for your loss..love and prayers from the Adams Family in West Virginia

Maranda Bishop
Sat, Oct 05, 2013
My thoughts and prayers are with you on the loss of Tiffany. Her story is absolutely amazing and gives those struggling now a glimpse of hope. As with my little angel we lost to T18, she is up in Heaven now with a perfect body and no pain. God Bless you all.

Elisabeth Graham
Sat, Oct 05, 2013
Sending heartfelt condolences and sympathy, as well as my admiration. May the following short story bring you a touch of inspiration, as the example of your love has undoubtedly brought inspiration to so many.
"Someone once pictured a crowd of grieving caterpillars carrying a cocoon to its final resting place. The poor distressed caterpillars, clad in black raiment, were weeping and grieving. Yet all the while the beautiful butterfly fluttered happily above the earth, forever freed from its earthly shell."

Stacy Haponik
Sat, Oct 05, 2013
I am so sorry for your loss - but so happy that the your daughter's light was able to shine in your lives for so many years! What a fighter!

Melissa Martin
Sat, Oct 05, 2013
Thanks for sharing, it's such an inspiration & it gives me & my family more hope! Our daughter has complete trisomy 22 & is 4 years old, she too has beat the odds. May God continue to Bless you & strengthen you during this time. Praying for your family.

Rose Nonginthirath
Sat, Oct 05, 2013
My deepest sympathy to you and your family through this difficult time. May God keep you in his Graces and may Tiffany smile down on your family daily. Thanks for sharing her story, it was an inspiration to read what an amazing person she turned out to be defying the odds of all medical professionals. Sending prayers to you and your family to get through this. May Tiffany rest in peace with the Lord.

Teri Sauls
Sat, Oct 05, 2013
I will be praying for you in this time. God is holding a new angel today and we are missing one. God bless you and your family.

Anna Black
Sat, Oct 05, 2013
I am so sorry for your loss - yet so amazed by the many years you had together. Praying for you all now that it is God's turn to take her home and love her.

Rachel Ziebell
Sat, Oct 05, 2013
My deepest sympathy to you. Your beautiful daughter has given hope to so many. Thank you for sharing your daughters story with us. I pray for comfort and peace in the days ahead.

Norma Sosko
Sat, Oct 05, 2013
I am glad you were blessed with your girl for so long. May she rest in peace. Thoughts and prayers to all.

Cassandra Brown-Crane
Sat, Oct 05, 2013
rest in peace now up above with the angels, you showed a lot of people that it is possible for a miracle ! & with your precious story I myself proceeded with my pregnancy after people telling me to terminate due to Edwards Syndrome Trisomy 18, I was reassured less then a month ago that the baby is healthy and fine. I wouldn't have got the strength to proceed without touching story's like yours ❤️❤️❤️
My thoughts are with your family, and pray for all of you in this very sad time, rest in peace angel.

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