MaCari Marie Kinney was born March 10, 2008 to Marc and Carri Kinney, two days later the doctor confirmed Trisomy 18. Midway through her pregnancy my sister’s doctor warned her that Trisomy 18 could be possible but my sister decided not to go trough with the tests that would confirm the diagnosis. She was in the second trimester of her pregnancy and the diagnosis would not have changed her decision to go forward with the pregnancy at such a late date. When MaCari was born everything seemed normal although the doctors were concerned about the elongated heels of her feet. I remember hearing my sisters screams through the phone shortly after the doctor gave she and her husband the news…”my baby is going to die, MaCari is going to die” is all I remember hearing. My sister was 37 years old and had wanted another child for some time. We were all so happy she was having a girl since girls were so few in our family. Carri had fantasized about her little girl for so long that the news about her diagnosis just devastated the entire family. For the next few days family and friends kept vigil at the hospital praying for the best but preparing for the worst. Within two weeks MaCari was released from the hospital to her parents. Instead of a joyful return home with their new baby my sister and her husband had to set up hospice care and round the clock nursing care for their infant daughter. Things no parent should have to face. In the beginning we would celebrate MaCari’s birthday every month because a year was just not an option at that time. Over time my sister and her husband have come to accept the diagnosis and try as hard as they can to treat MaCari or Lil Mama as we affectionately call her, as normal as possible. They celebrate the small accomplishments like when MaCari rolled over the first time or clapped her hands, when she smiles it’s the biggest deal in the world!!! We celebrated MaCari’s first birthday in style with 75 of her closest friends and family in attendance. Grandparents flew in from out of town, cousins we never even met before came out to celebrate this momentous occasion. MaCari is now 20 months old and she is still growing and thriving and fighting every day. She smiles and claps and sits up (with a little help of course). Lil Mama loves to watch her Baby Einstein and play with her feet, her eyes light up when her mommy and daddy walk in the room; it’s the best feeling in the world. Lil Mama has given us a few scares, with doctors telling her parents they had to “make the hard decision” and “your daughter won’t make it much longer” but Lil Mama has other plans and God has other plans for her as well. We continue to pray and put our faith in God.
MaCari's Update
MaCari was recently released from Children's Hospital for pneumonia. She lost a little weight but other than that she's doing just great! She has 3 teeth now and LOVES to show them off with that beautiful smile of hers!
MaCari turns 2!!!
March 10, 2010 MaCari celebrated her 2nd Birthday!
Jesus looked at them and said, “With man this is impossible, but with God all things are possible.” Matthew 19:24-16
Guest Book
If you would like, you can add your name and a short message to our Guest Book. Thank you.
Hi
Macari is beautiful inside and out. I am 9 months pregnant and my baby is diagnosed with trisomy 18. God makes all things possible.
Thank you
Rita
Tue, Jun 15, 2010
Praise God for your miracle baby girl. My family had a special little angel who lived for 1 month and 19 days and I praised God for each day we had her. Will be praying for Lil Mama
Carri Kinney
Mon, Jun 14, 2010
Little update on Miss MaCari. Miss MaCari is now sitting up on her own for long periods of time. It took my girl 2 years but guess what she's doing it on her own and we are so proud of her.
Love you so much MaCari!!
Mommy
Katie Ramirez
Thu, Mar 11, 2010
Happy Birthday to your precious Angel. I live in Baltimore as well with my daughter Elena, she will be 2 on Friday. We lost our 2nd baby to Trisomy 18 and seeing your child thrive is so joyous! all the best,
Katie
Wanda
Thu, Mar 11, 2010
Happy Birthday MaCari!! I thank God for sending such a blessing to us! Keep pushing as we can see God has the finally say! Love you Angel!!!
Victoria Miller
Thu, Mar 11, 2010
Happy Birthday MaCari! The world is a better place with you in it little one.
Loren
Wed, Mar 10, 2010
HAPPY 2ND BIRTHDAY MACARI - YOU ARE SUCH A BLESSING!
Vanessa Keaton
Wed, Mar 10, 2010
HAPPY BIRTHDAY .... Many blessings to the Brown/Kinney family.
Aunt Kelli
Wed, Mar 10, 2010
Happy Birthday MaCari!!! 2 years and THRIVING!!!!
Carri Kinney
Wed, Mar 10, 2010
I want to wish my daughter MaCari Marie Kinney a HAPPY BIRTHDAY!!! She turn 2 years old today. MaCari is still fighting her fight but she is still here with us today.
We love you sunshine,
Mommy and Daddy and your whole intire family.
Pediatrician of 3 T18
Mon, Dec 14, 2009
Great job, mom. dad and MaCari on your daily progress and survival! Hope that 2010 will be a healthy year for you and Happy Holidays! Don't give up
Denise
Wed, Dec 02, 2009
MaCari, you are an awesome individual. It has been a privilege being part of your life, and your parents lives. I've grown to love you, and hope we never loose touch.
Stay healthy Toot's, and enjoy your Christmas Holiday.
Popey
Thu, Nov 19, 2009
MaCari, you have brought joy to our lives since you have been here. I look forward to the happiness we will share with you. It brings so much joy to my heart to see how my son shows the joy and love you bring to him. The love between a daddy and his daughter is unspeakable. I love you with all my heart.
Your NaNa
Thu, Nov 19, 2009
My precious MaCari,you constantly remind me to appreciate the small things. Like our playing "Patty Cake"and "This Lil Piggy" with your toes. You love those toes. Seeing the excitement on your face when you turn the page in your Bible as we read. Oh! can't forget our daily stretches. Wow! that feels good. MaCari you have proven the word of God to be true. With men this is impossible; but with God all things are possible Matthew 19:26. MaCari I thank God for every moment we share and look forward to many many more. I love you, my beautiful granddaughter, and we will keep up the fight.
I continue to pray for the day when I hear you speak your first word and take your first step ( lets do it together).
Aunt Nikki
Wed, Nov 18, 2009
MaCari is a angel sent from God. She is a lovely little girl that is holding her on. She continues day by day to show the doctors and her family that she will be her with us. MaCari continue to work your magic. Love Aunt Nikki
YOUR SO-SO HANDSOME UNCLE SMOKE!
Tue, Nov 17, 2009
Macari, You are a blessing! You have brought two families together and each has shown unconditional love for you. Everytime I see you I smile! You're such a beautiful and strong child. You have been through some tough times, times that many of us will never face but you keep fighting! I love you, my lovely sis and my new brother with all my heart and i'm here for you always.
Auntie Candace
Tue, Nov 17, 2009
Sweet Angel MaCari!!!! WOW!!! Words can't express how proud I am of you!!! You came into this world and defied all odds. You've touched more lives than you know, and girl you're a SuperStar because you have more fans than you will ever know! From the moment I heard you were born, I had faith that you were a miracle in the making, and God is AWESOME!!! Look how far you have come, look how God is getting glory out of your life!!! You have been a blessing to our entire family, you have drawn us closer, and made us appreciate how blessed we really are!!! I told your Grandpa, either God is God, or He's not...and you my sweet princess are proof that God is all we need Him to be and more!!! I love you sweetie! God bless and keep you always!
Auntie Candy, Adam, Miika, and Heiress
Randi
Tue, Nov 17, 2009
MaCari,
You are such a beautiful little treasure. As God continues to smile on you, you always have a smile for your family. We love you very much sweetie pie!
Kim
Mon, Nov 16, 2009
Hey Juicey Girl!!! This is your Godmommie!!!
M-What a Magnificant gift God created;
A-For the Creator's Amazing grace and mercy rains down on your precious soul;
C-Champions are Courageous warriors and Conquerors of life's obstacles;
A-Angelic is your spirit that brings so much joy and laughter to the lives of others;
R- Radiant is that gorgeous smile that brightens and glows through stormy weather;
I- You Inspire others to humble themselves and understand that the Creator's gifts are precious that comes in ways unknown.
For God blessed us with the precious gift of MACARI...a gift we must all aspire to behold.
I Love you with all my heart my little Sunshine!!!!
Loren
Thu, Nov 12, 2009
MaCari, you are proof of angels on earth and you are loved more than you know. You light me up whenever I see and hold you, get a picture of you, or when your mommy talks about you. Bless you beautiful lil one and your wonderful parents.
April Fresh
Thu, Nov 12, 2009
MaCari, You are amazing! You have brought so much love into the lives of those around you. You have been blessed with great parents, but most of all they have been blessed with an angel and a warrior. Every single day is a testimony. God is so good! We witness your strength and we get stronger. We see your smile and hear your laughter and our problems are suddenly a thing of the past. Thank you for the lessons and the love MaCari.
Angelia Terry (ENA)
Thu, Nov 12, 2009
God has truly sent an angel amongst us. If I have never seen one of God's miracles before I see one now in you, Cari Bear. You have truly been a blessing for me and because my grandbaby paved the way I am able to give you that tender loving care that Lyric taught me. God has also shown us all that your destiny lies in HIS hand and HIS alone. MaCari you are that one that HE will show HIS greatest. I LOVE YOU CARI. May God continue to keep and bless you.
Delaunte, Jaelen, and Tonky says HI, CARI
Stefanie " Auntie Tittty"
Wed, Nov 11, 2009
Hey it's me your Auntie and I just wanted to write and say I'm so happy that your a fighter like the great Muhammad Ali...... You make me smile every time I see you...and you alone give me a reason to come home......When I'm not with you I always ask your mom " My sister" the progress you are making.....I want you to know that the times you go in the hospital my heart skips a beat but when I hear your going back home a smile comes on my face because thats just you proving to the doctors and everyone else your God's little miracle and only you and God makes decisions for you.......I love with all my heart and I can't wait to see you again...
P.S. Keep up the good work........
Trish Shihadeh
Wed, Nov 11, 2009
Just wanted to say "hi" and can't wait to see more pictures. I need to email you and fnd out how your little one is doing. anyhow we thin of MaCari often and are glad that she is such a fighter
Kavon Lewis
Wed, Nov 11, 2009
To my babysister MaCari your big brother's loves you. You are a fighter.
Love you,
Kavon
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Disclaimer: The content of this page does not reflect the views of the Trisomy 18 Foundation. The Trisomy 18 Foundation offers this space to parents as part of the Support Program. Parents have control over how they tell their child's story as well as which pictures they feel comfortable sharing with the Community.
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