Before our founding in 2003, learning about Trisomy 18 syndrome was difficult for parents and the public—especially in the context of prenatal diagnoses for expectant parents. Working together with our community members, the Foundation’s efforts have led to many advances in how Trisomy 18 is understood and how health professionals respond to newly-diagnosed parents in the United States, but there is so much that still needs changing. And the need for investments in genetic research to identify pathways to treatments has never been greater.
We tirelessly advocate for research innovations and new approaches to the search for treatments and preventions that can save lives and dramatically reduce the incidence rate of Trisomy 18 conceptions and increase survival rates. We provide a supportive community for everyone impacted by Trisomy 18 syndrome and related disorders. We always have the latest and most accurate information, and we educate everyone—from patients and families to medical professionals and the general public—about Trisomy 18 syndrome and related disorders. Click on the links to learn more about us and our work.
The content of this website is for informational purposes only and is intended to educate consumers about health care issues and choices. This information is not a substitute for professional medical advice, diagnosis, or treatment. You should always consult with your physician before making medical decisions or electing to undergo any medical testing or treatment, or if you have any questions or concerns about your health.