Trisomy 18 Families, we’re using this time of year to reflect on all of you, and thank you for all you’ve done. You have supported the Foundation with your gifts to invest in solutions for Trisomy 18! You have participated in awareness campaigns, and have donated your time and money to help bring a little […]
Have a Blessed Thanksgiving 2015
Improving Access to Medical Literature for Parents and Families
Our new Clinical Literature Resource improves access for Parents who often encounter challenges accessing the relevant medical literature that allows them to fully participate as informed advocates for their child. The Foundation has long advocated with coalition partners for Free Public Access to federally-funded peer-reviewed literature which is usually restricted to a pay-per-article system that […]
Grandmother Emma Bowens’ Nomination Leads to HSN Cares Award of $1000
We are thrilled to learn that the Trisomy 18 Foundation was nominated by one of our Trisomy 18 grandmothers, Emma J. Bowens of Atlanta. We will receive $1,000 from HSN Cares, the charitable arm of HSN: Home Shopping Network, as part of their Community Appreciation Month. Thank you for always supporting our organization in our […]
The Great Migration Is Underway This Week!
The Foundation is in the midst of what we’re calling the GREAT MIGRATION this week. A year in the making, we are moving to a new online system to serve you and your families—as well as health professionals and the science community—even better! For our Trisomy 18 parents and families: you’ll notice all the content […]
The Problem of Decision Making While in Shock
By Heather Morgan It is important to stop and process the news of Trisomy 18 before making any quick decisions. Maybe it was just this morning. You sat in the doctor’s office after your ultrasound. There had been too many long, awkward silences. You knew that something was wrong. Maybe it’s spina bifida. You’ve heard […]