A community working to make the world more aware of Trisomy 18 and the needs of Trisomy 18 families! National Trisomy 18 Awareness Day 2017
Trisomy 18 Foundation with 87 Other Organizations Call on Congress to Protect Medicaid
The Trisomy 18 Foundation and eighty-seven other Health Advocacy organizations joined together this week to call on Congress to address the significant and life-threatening consequences of their new health care plan for families who rely on critical health care services funded by Medicaid. Our combined efforts with these organizations that represent a range of patients […]
The Trisomy 18 Foundation’s Director Gives Talk at National Conference
At the Trisomy 18 Foundation, we work to educate healthcare professionals who are on the front lines of delivering a Trisomy 18 diagnosis. Last month, our Executive Director Victoria Miller spoke at the National Society of Genetic Counselors Conference in Seattle, Washington. We regularly build relationships with Genetic Counselors who are important allies in helping […]
FRIDAY is National Trisomy 18 Awareness Day!
Time to get out the purple and be ready to raise awareness about Trisomy 18 and the Trisomy 18 Foundation! Lots of great tools to use on Facebook Covers and Profile pictures. Just follow on to the Foundation’s Facebook page at http://www.facebook.com/trisomy18 and grab yours today. Share Pictures to the Facebook page of you and […]
You Voted on Facebook and Trisomy 18 Foundation Won a $5000 Grant
YOU DID IT! We are so Proud of you! Sugarlands Distilling Company has just announced the Moonshare Grants Recipients and… Posted by Trisomy 18 Foundation on Tuesday, February 2, 2016
Wishing you a Gentle Holiday on Angel Wings . . . from all of us at Trisomy 18 Foundation.
Have a Blessed Thanksgiving 2015
Trisomy 18 Families, we’re using this time of year to reflect on all of you, and thank you for all you’ve done. You have supported the Foundation with your gifts to invest in solutions for Trisomy 18! You have participated in awareness campaigns, and have donated your time and money to help bring a little […]
Improving Access to Medical Literature for Parents and Families
Our new Clinical Literature Resource improves access for Parents who often encounter challenges accessing the relevant medical literature that allows them to fully participate as informed advocates for their child. The Foundation has long advocated with coalition partners for Free Public Access to federally-funded peer-reviewed literature which is usually restricted to a pay-per-article system that […]
Grandmother Emma Bowens’ Nomination Leads to HSN Cares Award of $1000
We are thrilled to learn that the Trisomy 18 Foundation was nominated by one of our Trisomy 18 grandmothers, Emma J. Bowens of Atlanta. We will receive $1,000 from HSN Cares, the charitable arm of HSN: Home Shopping Network, as part of their Community Appreciation Month. Thank you for always supporting our organization in our […]
The Great Migration Is Underway This Week!
The Foundation is in the midst of what we’re calling the GREAT MIGRATION this week. A year in the making, we are moving to a new online system to serve you and your families—as well as health professionals and the science community—even better! For our Trisomy 18 parents and families: you’ll notice all the content […]