Connecting with other families who have experienced what you are experiencing is such an important need for all parents — especially in the early day of learning about Trisomy 18 when every thing you’re hearing is a shock and scary and you don’t know what the future holds for you, your child and the rest of your family.
We have a large number of settings where these connections can be made — some are more private than others, some are better at different stages in your journey. Parents in pregnancy often find it difficult to be in a group focused on the caretaking for living children when their child has not arrived yet, and may never reach those stages of development.
Consider this a consumer’s guide to community resources. Some are provided and moderated by the Foundation and some are provided by other groups and some by unaffiliated parents.