Family Stories

Grace Elizabeth’s Story

Parents: Michelle and Jon Hometown: Wichita, Kansas Born at 35 weeks, lived a few minutes Grace Elizabeth’s Story Michelle began having health problems even before she knew she was pregnant. After visiting her doctor and being diagnosed with a serious case of hyper-thyroid, Michelle was scheduled to have a radio-active treatment. Knowing there was a […]

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Grace Anne’s Story

Parents: Christine and Paul Hometown: Huntington, New York July 26, 2002 – September 26, 2002 Grace Anne’s Story “All I remember is the shock I went into. They are saying a million things and you can’t hear any of it. You want it all to go away. It is completely unreal. How can this be

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Gina Prayer’s Family

Parents: Wendy and Scott Hometown: Singapore June 1, 2003 – September 24, 2003 Gina’s story “Everywhere we went, people were always running after us with one of Gina’s socks and saying ‘Excuse me, your baby lost her sock’. She didn’t lose it. She purposely kicked it off!” Gina Prayer had already developed into quite a

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David Isaac’s Family

Parents: Trisha and Charles Hometown: Manitoba, Canada Induced at 34 weeks, lived several minutes David’s Story Although their baby had a lot of signs of having Trisomy 18, Trisha’s doctor did not tell her he suspected Trisomy 18. However, it seemed evident that he suspected something was wrong since he encouraged them to terminate without clearly

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Dakota Dee’s Family

Parents: Jennifer and Daniel Born to heaven at 22 weeks Dakota Dee’s Story Pregnant with her first child, Jennifer was in the hospital for a kidney infection. During a routine u/s they found something of greater concern than her kidneys: her baby had an omphalocele. That’s when she heard the first talk about “markers” and

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Colm Gehlen’s Family

Parents: Pam and Corey Hometown: Burnsville, Minnesota Born to heaven at 26 weeks Colm’s Story When their triple screen came back with a 1:10 ratio for Trisomy 18 at 15 weeks, Pam and Corey decided to have a level II ultrasound. When several of the markers for Trisomy 18 were indeed found during ultrasound, they

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Christian Robert’s Family

Parents: Julieanne and Glenn Hometown: Runcorn, Cheshire, England September 1, 2003 – September 6, 2003 Christian Robert’s Story Christian was born at 36 weeks following an uneventful but busy pregnancy. Julieanne’s biggest concerns were the sex of the baby, and that there wasn’t much kicking at all. Considering that her previous pregnancy was with twins,

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Casey Ruth's Family

Casey Ruth’s Family

Parents: Pat and Tom Hometown: Wilmington, North Carolina Born: March 26, 1986 Casey Ruth’s story “At 14 years old we found out our daughter had something that most children would not survive.” Tom and Pat adopted Casey Ruth when she was a newborn. At the time, she was diagnosed with Down Syndrome (T21). They felt

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