Our Featured Fighters Living Life to the Fullest!
In Loving Memory
In Loving Memory of our Children Gone Too Soon Memorials from January 1, 2020 Matthew Nelson 1/9/2020 to 1/10/2020 Barrett Henry 1/17/2020 Born Still Jackson Henry 1/16/2020 to 1/18/2020 Leon Matthew Thomas 1/19/2020 to 1/19/2020 *Lived eleven hours Josephine Rose King 1/20/2020 to 1/20/2020 *Lived two hours Logan Olivia Walsh 1/22/2020 *Lived twelve hours Franco Figueroa 1/22/2020 Born Still Ada Wren 1/28/2020 Born […]
My First Six Months as Executive Director
I hope that this letter finds you and your families safe and healthy. After being in my new position as Executive Director for six months, I wanted to update you. As you may know, the Trisomy 18 Foundation announced this past winter that Victoria Miller would be retiring as Executive Director, and I would be […]
Sometimes we need a little bit of Faith!
Faith Marie Spicher is just that – a little bundle of faith, hope and prayer – and more simply put, a miracle.
New Executive Director!
The Trisomy 18 Foundation Board of Directors is pleased to announce the appointment of Kris Shaughnessy as the new Executive Director. Kris will replace Victoria Miller who is retiring effective February 1st, 2020. Outgoing Executive Director, Victoria Miller Victoria Miller founded the Trisomy 18 Foundation in 2003, after the death of her son, Isaac. Isaac […]
Having the help of Hospice doesn’t mean that you are giving up on your child 💜
Hospice Equals Hope for Medically Complex Child
Six-Year-Old Moira Is One of the Sickest People in America. So Why Is North Carolina Trying to Gut Her Health Care?
Kids with complex medical problems were supposed to get the care they need at home—until states began taking away their services. Many of our parent-caretakers of living children coping with a Trisomy 18 diagnosis WANT you to read this important article. It will help you understand what our care-taking families face caring for their medically-fragile […]
Whimsical Photo Series Showcases Babies With Trisomy 18 and other Special Needs
Angela Forker’s “Precious Baby Project” features babies with serious medical conditions like Trisomy 18. “What a privilege it is for me to come into close contact with these precious little ones and their remarkable families!” the photographer said. “My hope is to continue to spread hope and joy to many more families and that my […]
Krissy, living with Trisomy 18 at age 18, is Cheerleader For the Day!
Buckley HS in Buckley, Washington make Krissy Krotzer, 18, who was born with Trisomy 18, Cheerleader for the Day. She is nonverbal, and has limited mobility. But she’s bubbly and not afraid to demand a kiss from her dad. “There’s a lot of things she can’t do, but the one thing she can do is […]
One Dad’s Moving Story of Becoming a Trisomy 18 Rainbow Dad
Many times, the voices we hear are mother’s voices in the Trisomy 18 community. But our Fathers have an equally important experience with their child, impacted by a Trisomy 18 diagnosis. Bo Smolka, a member of the Trisomy 18 Foundation Board of Directors, wrote this piece after the arrival of his new daughter, Katie who […]