Kids with complex medical problems were supposed to get the care they need at home—until states began taking away their services. Many of our parent-caretakers of living children coping with a Trisomy 18 diagnosis WANT you to read this important article. It will help you understand what our care-taking families face caring for their medically-fragile […]
Whimsical Photo Series Showcases Babies With Trisomy 18 and other Special Needs
Angela Forker’s “Precious Baby Project” features babies with serious medical conditions like Trisomy 18. “What a privilege it is for me to come into close contact with these precious little ones and their remarkable families!” the photographer said. “My hope is to continue to spread hope and joy to many more families and that my […]
Krissy, living with Trisomy 18 at age 18, is Cheerleader For the Day!
Buckley HS in Buckley, Washington make Krissy Krotzer, 18, who was born with Trisomy 18, Cheerleader for the Day. She is nonverbal, and has limited mobility. But she’s bubbly and not afraid to demand a kiss from her dad. “There’s a lot of things she can’t do, but the one thing she can do is […]
One Dad’s Moving Story of Becoming a Trisomy 18 Rainbow Dad
Many times, the voices we hear are mother’s voices in the Trisomy 18 community. But our Fathers have an equally important experience with their child, impacted by a Trisomy 18 diagnosis. Bo Smolka, a member of the Trisomy 18 Foundation Board of Directors, wrote this piece after the arrival of his new daughter, Katie who […]
A New Symbol to Light the Way
We all know Trisomy 18 is a relentless stalker of new life, often ending lives before they even get a chance. For those that do get a chance at life, their lives can be far too brief and far too burdened by life-threatening health challenges. As a community, we must stop this from happening to […]
10 Things You Wish People Knew about Trisomy 18
This year, in the days leading up to Trisomy 18 Awareness Day on March 18th, we asked our amazing supporters what were the Top Things We Wish People Knew about Trisomy 18. Over and over again, you shared what you wished people and other parents knew about having a child with Trisomy 18, and it […]
Are We Supposed to be Able to Celebrate Mother’s Day?
For those of us who have lost a child to Trisomy 18, Mother’s Day can be such a painful day — especially the 1st Mother’s Day after our child is gone. And if we have no other living children, if this loss was the loss of our first and only child, we can wonder if […]
Our Community Turned Out for 2017 National Trisomy 18 Awareness Day!
A community working to make the world more aware of Trisomy 18 and the needs of Trisomy 18 families! National Trisomy 18 Awareness Day 2017
Trisomy 18 Foundation with 87 Other Organizations Call on Congress to Protect Medicaid
The Trisomy 18 Foundation and eighty-seven other Health Advocacy organizations joined together this week to call on Congress to address the significant and life-threatening consequences of their new health care plan for families who rely on critical health care services funded by Medicaid. Our combined efforts with these organizations that represent a range of patients […]
The Trisomy 18 Foundation’s Director Gives Talk at National Conference
At the Trisomy 18 Foundation, we work to educate healthcare professionals who are on the front lines of delivering a Trisomy 18 diagnosis. Last month, our Executive Director Victoria Miller spoke at the National Society of Genetic Counselors Conference in Seattle, Washington. We regularly build relationships with Genetic Counselors who are important allies in helping […]