Remember the old days, when you paid with cash for your groceries and could drop the loose change in a donation can to help out an organization you care about? Now, the practice of making small and affordable donations to a cause you care about IS BACK – Trisomy 18 Foundation has partnered with CaringCent […]
One Dad’s Moving Story of Becoming a Trisomy 18 Rainbow Dad
Many times, the voices we hear are mother’s voices in the Trisomy 18 community. But our Fathers have an equally important experience with their child, impacted by a Trisomy 18 diagnosis. Bo Smolka, a member of the Trisomy 18 Foundation Board of Directors, wrote this piece after the arrival of his new daughter, Katie who […]
A New Symbol to Light the Way
We all know Trisomy 18 is a relentless stalker of new life, often ending lives before they even get a chance. For those that do get a chance at life, their lives can be far too brief and far too burdened by life-threatening health challenges. As a community, we must stop this from happening to […]
10 Things You Wish People Knew about Trisomy 18
This year, in the days leading up to Trisomy 18 Awareness Day on March 18th, we asked our amazing supporters what were the Top Things We Wish People Knew about Trisomy 18. Over and over again, you shared what you wished people and other parents knew about having a child with Trisomy 18, and it […]
Are We Supposed to be Able to Celebrate Mother’s Day?
For those of us who have lost a child to Trisomy 18, Mother’s Day can be such a painful day — especially the 1st Mother’s Day after our child is gone. And if we have no other living children, if this loss was the loss of our first and only child, we can wonder if […]
Our Community Turned Out for 2017 National Trisomy 18 Awareness Day!
A community working to make the world more aware of Trisomy 18 and the needs of Trisomy 18 families! National Trisomy 18 Awareness Day 2017
Trisomy 18 Foundation with 87 Other Organizations Call on Congress to Protect Medicaid
The Trisomy 18 Foundation and eighty-seven other Health Advocacy organizations joined together this week to call on Congress to address the significant and life-threatening consequences of their new health care plan for families who rely on critical health care services funded by Medicaid. Our combined efforts with these organizations that represent a range of patients […]
The Trisomy 18 Foundation’s Director Gives Talk at National Conference
At the Trisomy 18 Foundation, we work to educate healthcare professionals who are on the front lines of delivering a Trisomy 18 diagnosis. Last month, our Executive Director Victoria Miller spoke at the National Society of Genetic Counselors Conference in Seattle, Washington. We regularly build relationships with Genetic Counselors who are important allies in helping […]
FRIDAY is National Trisomy 18 Awareness Day!
Time to get out the purple and be ready to raise awareness about Trisomy 18 and the Trisomy 18 Foundation! Lots of great tools to use on Facebook Covers and Profile pictures. Just follow on to the Foundation’s Facebook page at http://www.facebook.com/trisomy18 and grab yours today. Share Pictures to the Facebook page of you and […]
You Voted on Facebook and Trisomy 18 Foundation Won a $5000 Grant
YOU DID IT! We are so Proud of you! Sugarlands Distilling Company has just announced the Moonshare Grants Recipients and… Posted by Trisomy 18 Foundation on Tuesday, February 2, 2016